Recovering

I'm sorry I've been inactive so long, but I'm happy to say that I'm home from a rather long hospital stay, and then a session in a rehab facility -- and now I'm recovering. There's a lot I could say about how medical institutions work, based on my own experience these past weeks, and on things my friends and family have gone through.

Maybe I could put it this way -- try to imagine Gray's Anatomy combined with Catch-22. Or imagine a version of Gray's Anatomy (a more truthful one) in which half the communications between people on the medical staff -- and between medical staff and patients -- are halfway incoherent, or even completely so. You haven't lived until you've been rolled on a stretcher to the OR for surgery, and then hear the OR staff talking about how something new has come up, and you're not going to have surgery that day. Nobody tells you this -- you just hear them talking about it. And then one of the doctors throws a little hissy fit, because he hasn't been told how things stand. Based on my experience, the confusion this demonstrates might be more typical than not, and I'm not saying that to disparage the skill or caring of the people involved. It's their administrative processes that need work.

One evening a nurse came on duty, and told me not to eat or drink anything after midnight, because I might be having surgery -- again! -- the next day. I hadn't heard anything about even a remote possibility of a second procedure, and was naturally amazed. The nurse assured me that a doctor would come to tell me all about it. But hours later, when no doctor appeared, and I asked the nurse what was going on, she told me it had all been a mistake. Another nurse had told her this news about me -- news that wasn't true at all. There was no formal, written medical order about any surgery coming up. The whole thing had been hearsay. And my nurse, once she realized that she'd just been passing on rumors, never bothered to tell me, until I asked. All this, at a major New York City hospital.

I've heard far worse. A few years ago, a friend of mine became a father. The baby was hooked up to various monitors, and at one point -- while my friend and the baby's mother were standing nearby -- the monitors began sounding alarms. Two medical people came in, and without a word to the parents, began having an argument about whether this was really a medical crisis, or whether the machinery might be malfunctioning. They actually walked away continuing their dispute, without a word to the parents. Luckily, the machinery was the problem, not the baby, but the way this was handled just sounds sick.

The moral of all this? As a couple of doctors emphasized to me-- doctors who see very clearly what's going on -- you, the patient, have to take charge of your medical care. You have to ask sharp questions, complain when something doesn't seem right, and insist on changes when obvious mistakes are being made. If I and my wife hadn't done that, I'd have been in rehab for four weeks instead of one, and would have paid hundreds of dollars for a completely unnecessary ambulance ride that my insurance didn't cover, and (as I correctly insisted) could just as well have been done in a much cheaper ambulette, or even in a taxi. Again I'm not saying that the medical people I dealt with, on all levels, were incompetent. Far from it. But their administrative procedures need lots of work.

April 8, 2007 12:48 PM | | Comments (6)

Categories:

6 Comments

First of all, welcome back! Glad to hear of your recovery, and looking forward to your posts.

Your experience with the American medical system recapitulates my experience and that of my friends'. A dozen years ago when helping a friend who was dying of AIDS, I learned that every patient needs an advocate: someone who can ask questions, actively track down information, help make decisions about medical care. No person sick enough to be hospitalized can handle these responsibilities.

After my friend's death I sent a fruit basket to each of the three nursing staffs. They deserved a token of appreciation for their work. My friend's physician--once I had a legal medical power of attorney--was also wonderful.

One Sunday morning when the visiting nurse thought that my friend was dying, she talked with the physician managing care, who recommended that my friend be moved to the hospital for tests. I wouldn't agree, because transporting him was always traumatic for him. I refused to agree until I talked with my friend's own physician--who called me when he returned home from church.

My friend--alas!--died a week later. And as sad as that end was, I at least could console myself that I had done for him what he could never have done for himself.

Dear Greg: So glad you are on the mend, and doing much better! Have missed your pithy and insightful online comments :-) Ms. AM caught me up on your health saga...good fodder for a different sort of book!

Greetings, Deborah

Thanks, Deb. I think I'll pass on writing that book! It'd degenerate pretty quickly into a rant. But I'd love to see a book on the subject by a management expert.

I've missed your posts! Glad you're back.

I would love to hear your thoughts on Gene Weingarten's article in Sunday's Washington Post magazine about Joshua Bell performing in a DC metro station. Have you seen it?

Hi, Margo. Thanks for the good wishes!

I haven't read the piece, but I've certainly heard a lot about it. One thing we might not know is how much attention anyone on the street might get. Are there studies of this, by sociologists? Street musicians, in any case, have been so common over the last few decades that they often don't get much attention. I've heard astounding performances in the New York subway, for instance, with no one standing around listening. Good street musicians really aren't uncommon, and if Josh is, obviously, better than good (a lot better), this doesn't mean that many people passing by would notice that. Probably you'd have to hear concert violinists a lot to immediately understand that his is world-class playing.

Greg,

So sorry about your ordeal and glad you are back.

Sadly, I finally figured out the problem with hospitals (and Emergency Rooms) long ago: they are all like the military: Badly , full of "pork," or worse.

They communicate with you on a "need to know basis"; change orders at random; order you around; dictate when you have which procedures; and, generally, scare the "sh**" out of you.

Unlike you, I had better luck with nurses than interns/residents---who generally know almost nothing (certainly less than a lot of experienced nurses), and they can kill you faster.

Welcome home.

P

Thanks, Paula. Good analogy, hospitals and the military. The same idea occurred to me, though since I've never been in the military, I'm not speaking from direct experience. Still, I kept thinking of the line people keep using to describe military life: "Hurry up and wait." I had a fair amount of that in the hospital.

Greg, it's good to see you back. I'm glad you survived both your accident and the system.

There are groups working on the problems you saw, but I'm sure that's a hard process that has far to go, as we've seen in the news and in what you've experienced. http://content.healthaffairs.org/cgi/reprint/21/3/80.pdf and http://www.leapfroggroup.org/ are a couple of pointers into that work.

Take care, and get through your recovery posthaste!

Greg, Again, welcome back, my friend and fellow victim of the collapsing American medical system. I am forwarding this - your post and my comment - to my resident Florence Nightingale and wife of almost forty years, Kimberly. She is preparing to write a letter to all the culprits - for now but not for long they will remain nameless - demanding some satisfaction for the shoddy post-operative and subsequent at-home follow up that I failed to receive after a fall and multiple fracture of my right leg. Yours in misery!
Rafael

Leave a comment

Resources

Age of the Audience 
Conventional wisdom: the classical music audience has always been the age it is now. Reality: It used to be younger -- dramatically younger, in fact. Here's some evidence -- actual texts of old studies, links to NEA studies -- plus my blog posts on this subject. more

earlier resources

Things I like

Frank O'Hara... 
...or rather these lines from one of his poems, quoted today in the New York Times Book Review: more

The Ten-Cent Plague
 
To paraphrase the old quote about the Nazis: "They came for the comic books, but I didn't read comic books..." more

Improvisation Games
 
An inspired book... more

Elektra 1957
 
Seismic recording.  more

Carmen Sings Monk
 
It's piano music, but she'll sing it anyway...
more
more things

About this Entry

This page contains a single entry by Sandow published on April 8, 2007 12:48 PM.

TKO was the previous entry in this blog.

Boring old Handel is the next entry in this blog.

Find recent content on the main index or look in the archives to find all content.

AJ Ads

Introducing
AJ Arts Blog Ads

Now you can reach the most discerning arts blog readers on the internet. Target individual blogs or topics in the ArtsJournal ad network.

Advertise Here

AJ Blogs

AJBlogCentral | rss

special
Program Notes
the blog of the National Performing Arts Convention
culture
About Last Night
Terry Teachout on the arts in New York City
Artful Manager
Andrew Taylor on the business of arts & culture
blog riley
rock culture approximately
CultureGulf
Rebuilding Gulf Culture after Katrina
diacritical
Douglas McLennan's blog
Flyover
Art from the American Outback
Life's a Pitch
For immediate release: the arts are marketable
Mind the Gap
No genre is the new genre
Rockwell Matters
John Rockwell on the arts
Straight Up |
Jan Herman - arts, media & culture with 'tude

dance
Foot in Mouth
Apollinaire Scherr talks about dance
Seeing Things
Tobi Tobias on dance et al...

jazz
Jazz Beyond Jazz
Howard Mandel's freelance Urban Improvisation
ListenGood
Focus on New Orleans. Jazz and Other Sounds
Rifftides
Doug Ramsey on Jazz and other matters...

media
Out There
Jeff Weinstein's Cultural Mixology
Serious Popcorn
Martha Bayles on Film...

classical music
The Future of Classical Music?
Greg Sandow performs a book-in-progress
On the Record
Exploring Orchestras w/ Henry Fogel
Overflow
Harvey Sachs on music, and various digressions
PostClassic
Kyle Gann on music after the fact
Sandow
Greg Sandow on the future of Classical Music
Slipped Disc
Norman Lebrecht on Shifting Sound Worlds

publishing
book/daddy
Jerome Weeks on Books
Quick Study
Scott McLemee on books, ideas & trash-culture ephemera

theatre
Drama Queen
Wendy Rosenfield: covering drama, onstage and off
lies like truth
Chloe Veltman on how culture will save the world
Stage Write
Elizabeth Zimmer on time-based art forms

visual
Aesthetic Grounds
Public Art, Public Space
Artopia
John Perreault's art diary
CultureGrrl
Lee Rosenbaum's Cultural Commentary
Modern Art Notes
Tyler Green's modern & contemporary art blog
Creative Commons License
This weblog is licensed under a Creative Commons License.